July 31, 2011

Random Update!

I feel like I have totally neglected this blog.  We've been so busy trying to get everything ready for Kate's admission that I haven't even pulled out my camera in a week!  So unlike me!

Because everything is better with a picture, here is one from 2 or 3 weeks ago that I never got around to posting!


I think bullets will be best for this randomness!

*Kate has so many tests/ appointments before being admitted.  She has a cardiology appointment tomorrow (Monday) that includes a sedated echo of her heart, a kidney test Friday, chest xray and lung function test next Monday, and surgery to have her central line placed Tuesday morning.  Then, she'll be admitted directly to the BMT unit from day surgery recovery.

*It is stewardship reporting this week at work.  Which means it is my busiest time.  So, I will be training my backfill (I'm taking at least 6 months off starting Thursday), meeting our reporting deadlines, and taking Kate to all of her appointments.

*I've been shopping for Kate's hospital attire all week!  Kate has an adorable wardrobe but, let's be honest, smocked dresses/ bubbles aren't the most comfortable things.  I've picked up so many cute two piece jammies (non of her zipper jammies will work due to her IV lines), leggings, tunics, cute tops, etc.  Kate is going to be the most stylish bone marrow transplant patient ever!

*Packing for a 6 week hospital stay is hard.  I know we will only be 15 minutes from the house but, I'm trying to think of everything we might need.  Thinks like laundry detergent pop into my head at 2am.

*I have become the incredible shrinking woman.  If I could bottle up the way my body reacts to stress (rapid weight loss) and sell it, I would make millions.

*I am totally overwhelmed (in a good way) by all of the support we have received.  Facebook messages, phone calls, texts, emails, blog comments - I am just blown away by how many people are thinking about Kate and praying for our family!  We are very blessed to have such a great support system during this extremely difficult time!

I hope everyone has a great week - I'll try to update about Kate's tests and such when I get a chance!

I can't believe we are already at day -19!  Less than 3 weeks and my sweet girl will be given her second chance at a long life!

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11 comments:

Jacki said...

Honestly I have nothing but respect, thoughts, and prayers for you and your family. I registered yesterday to be a bone marrow donor with your little one in my thoughts. Keep the faith and know that many are praying for you and your family!!

Ali said...

I love getting the updates (& the photo is adorable! I miss my daughter's baby days and she is only 2.5), BUT given the circumstances it only makes sense that you want to spend every minute doing "normal" things with Kate.

I think about your family all the time and my family is praying for you.

On a side note, I am planning to register as a BM donor once my son is born and we will be donating his cord blood.

Rebecca said...

I can't imagine what you are going through right now. I am keeping your family in my thoughts and prayers. I had a central line put in when I was 16 weeks pregnant and it stayed until 36 weeks. BEST THING EVER! The procedure took less than 5 minutes. No more needle sticks, just put it in the line.

Rebecca said...
This comment has been removed by the author.
Jessica said...

Wow, it will be here before you know it! I'm sure she will be the most stylin' girl there! :)

Lindsay said...

Still saying lots of prayers for you all!

Lindsay said...

Keeping you all in my prayers!

Shannon said...

I can't believe how soon you guys will be in there. I am so happy that she is that much closer to her new beginning! I'm sure you must be overwhelmed with so many emotions. You are constantly in my prayers. I know we do not "know" one another but I have been following you blog for a long time, you guys have such a place in my heart.

Leah said...

Hi Lindsey!

Found your blog a couple of weeks ago... it's been great to see what y'all are up to and to follow Kate's progress. I hope everything goes smoothly as you transition into your new "home" in the hospital. Thinking of you and Kate and Alex!

Nadine Marlyne said...

I'm happy to see that you guys are doing okay! Thanks for the update.

Caydee said...

I am praying for you and your family through this tough and stressful time. I recently became a bone marrow donor and trying my best to get everyone I know registered...Your little girl is such a sweet baby....and I hope she will get well really soon and be able to live her life without pain.

Best Wishes,
Caydee

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