August 27, 2011

Day -4: Campath is the Devil

The past two days have been the absolute worst of this journey so far.

Kate started campath yesterday and is not handling it well at all. She was fine for the first two hours of the four hour infusion but, as hour two came to an end, Kate became unconsolable. Despite being on Demerol, Ativan, Tylenol, and benadryl, she was uncomfortable, vomiting, shaking, and spiked a fever that got up over 105.

No matter how many medical professionals told me how "normal" her reaction was, I was very worried by such a high fever. Thankfully her fever broke and hasn't been over 102 since. We've even had moments of no fever!

This morning I woke up to a swollen baby that had dangerously low blood pressure. We battled her blood pressure most of the morning and had to wake her up multiple times as her pressure dropped as low as 60/20 on several occasions. Right now she is hanging out around 80/33 which is low but now nearly as scary as it was earlier. She is sleeping with a pulseox on and having her blood pressure taken every 30 minutes.

Add in the balancing act of input verse output to ensure the third drug (cytoxin) isn't ruining her kidneys and it has been a very, very busy day. It's going to be a busy night as well with the requirement that her diaper be changed every two hours on top of the prospect of having to wake her often to increase her blood pressure.

All of this is "normal" but scares me so much.

Please keep Kate in your prayers - she has 2 more days of these horrible drugs and is so uncomfortable. I'm ready for my upbeat, active girl that is filled with personality to make an appearance again.


- Posted using BlogPress from my iPad

24 comments:

cjdubs13 said...

Many prayers are headed your way.

Allison said...

Lots of prayers for sweet Kate. Hang in there Mama!

Kelly said...

So sad. :( I have been thinking ahout you today, and I'm sending so much love.

Wendy said...

I'm glad those are all "normal" side effects but it sounds absolutely miserable. I hope the next few days go by quickly and I'll be praying for ALL of you!!

Ali said...

We are praying so much for Kate! That sounds like a "normal" no mother would be comfortable with. You are so brave!

PattyAnn said...

So many prayers for sweet Kate, and for strength for you Lindsey. Thinking of y'all each and every day.

Tamika said...

Many prayers for comfort as these horrible yet necessary drugs do their job!

Jenn said...

Thinking of your sweet Kate! Stay strong, Mommy! You're both very brave.

Anonymous said...

Your friends at thebump.com's special needs board are thinking of you and sending you lots of prayers and hugs. Hang in there mama :)

Anonymous said...

Sending so many prayers Kate's way!! Stay strong sweet, little girl!

Emily said...

Praying hard for your precious little lady! Wow, she is so brave and so are you. Hang in there!

Tami said...

I can't imagine how hard it must be watching your sweet girl go through all of this. I am praying for Kate and your whole family!

Angela McInnis said...

Stay strong, Lindsey & Alex. You are all three covered in prayer.
Angela McInnis

Sara Leah Cookies said...

Prayers prayers and prayers, you are all so strong.

Jennifer said...

I'm praying for the three of you!

Lynsey said...

Many many prayers coming your way! All three of you are completely covered in prayers and in Gods arms.

Megan and David said...

I am so sad to hear that sweet Kate is suffering like this. I am praying for your family constantly.

Tonja said...

How terrifying that must be for you! Poor little Kate! Extra prayers coming her way.

Clay said...

Lots of love and prayers being sent your way!

Andrea said...

Praying for you guys!

Anonymous said...

Praying for Kate in NC

liz said...

Praying for you and Kate. I have a 9 month Kate and can only imagine how difficult this is. May this soon be a distant memory.

Anonymous said...

Continuing to pray for you and sweet sweet Kate and your family. <3klmfbp3

Anonymous said...

Sending lots of prayers for Kate, her mama, and her daddy - from another Bump friend!

Blogging tips