November 2, 2011

Hard day

Kate had a routine clinic appointment this morning. We were eager to see how she was responding to the steroids and praying that her liver levels were continuing to trend downward.

Unfortunately, that was not the case and we received bad news.

Kate's liver is really struggling. Several of her liver levels have increased and are extremely high. Even higher than they were last Friday.

Kate's nurse practitioner wanted to rerun the liver function tests just to make sure that it wasn't a lab error because the levels jumped so much, so fast. It was not an error and in the two hours between blood draws, her levels actually got worse.

We were sent to radiology for a liver ultrasound and Kate will have a biopsy Friday at 8am.

We don't have any answers right now but will hopefully have a diagnosis and a plan to get my sweet girl better by early next week. There is still a chance that this is only GVHD and that Kate simply needs stronger medication to treat it. But, there is also a chance that this is something else, something major. That thought terrifies me.

Needless to say, I've been a mess all day. I know I will keep fighting for Kate but my gosh I'm exhausted and I feel defeated.

I am so incredibly sad that Kate is dealing with this now. She has been through so much. Her little body needs a break. It can't take much more.

As always, we would appreciate any and all thoughts and prayers.


- Posted using BlogPress from my iPhone

37 comments:

J.Mo said...

As always, you're at the top of my prayer list.

Megan and David said...

Sweet Kate is always in my prayers, as you are, sweet friend! I can't understand why Kate hasn't caught any breaks yet. It isn't fair.

NicB said...

Bless her little heart! Sweet Kate is such a little trooper! Prayers coming your way from my entire family!

Allison said...

Aww so sorry for bad news. Many prayers things can turn around soon! I'll be thinking & praying for you all this week!

Jennifer said...

Oh gosh, I am so sorry. I'm am praying, praying, praying for you guys.

Wendy said...

I'm so sorry to hear this news! I'll pray extra hard for all of you tonight!!!

Kelly said...

Oh, I am so sorry! I will continue to keep you all in my thoughts!

Anonymous said...

Will continue to pray for you and your beautiful daughter. I hope you get good news soon!

KK @ Running Through Life said...

Prayers for your family and for little Kate!

Jenn said...

Many, many prayers coming your way.

claudia said...

I'm sorry for the bad news! We will keep praying for Kate and for you too! God will give you strength and He will reward you for all your faith!!!
God Bless and we will be praying for lovely Kate

claudia said...

I'm sorry for the bad news! We will keep praying for Kate and for you too! God will give you strength and He will reward you for all your faith!!!
God Bless and we will be praying for lovely Kate

Amber Weyer said...

Found your site through Top Mommy Blogs. So sorry to hear about the things your baby girl is going through. Prayers and thoughts are being sent your way!

Lindsey said...

Saying extra prayers tonight for Kate, but even more so for you! I admire your strength so very much and I couldn't possibly imagine the toll this has taken on you. You are an amazing mother and I am sure that your strength will help Kate pull through. Hugs, Love & Prayers!!

Ali said...

I have no words for you, but I will be praying and praying for your sweet Kate.

Jennifer said...

Oh, Lindsey. I am so sorry to hear this and my heart breaks for sweet Kate and for you. As always we will continue to keep sweet Kate in our prayers.

Erin said...

Lindsey- wish I could give you a giant hug. What does something major mean? I'm worried for all of you and praying every moment I get the chance.

Andrea said...

Praying, Praying, Praying for you guys, hang in there. I feel so bad for you guys, but admire your strength! God is in control.

Anonymous said...

Prayers for sure!

the workaholic momma said...

Praying for sweet Kate and your family. I cannot imagine what you guys are going through and how hard this must be on all of you...sending lots of hugs.

jlynn said...

Always thinking of you and sending lots of prayers. (((hugs)))

Jill said...

I'm so sad to read this. You will be in my thoughts and prayers.

Quinn said...

Lindsey - so sorry to hear about your rough day with Kate. You have already been through so much as a family. My prayers are with your family as we hope to hear some good news shortly <3

Anonymous said...

Praying for Kate

Missi said...

I am a complete stranger, but have followed Kate's journey through your blog....sweet Kate is always in my prayers. Sending extra positive thoughts your way!

Missi said...

I am a complete stranger, but have follwed Kate's journey through your blog...your sweet Kate is always in my prayers. Sending extra good thoughts your way today!

Kristin said...

Praying praying praying. I will remind my church again too. Sending you love and comfort.

Christy said...

Praying things get better soon.

MamaBear13 said...

Brand new right now to your blog. This is so sad and I'm thinking of you and your family, sending all my love that way. Even Baby Boy is sending big hugs and hopes, he knows something's wrong by mama's reactions. *hugs*

C said...

Best wishes to Kate. Her little body has been under siege and hope she just needs different meds.

Ginger Cullen said...

Wishing that little, beautiful girl well.

Beckie said...

Continuing to pray for you and your kate!!!! xoxooxx

Beth Obenhaus said...

I'm so sorry sweetie. Praying hard that it's GVHD and an increase in her meds will alleviate the liver issues. I love you.

Olivia said...

Praying for Kate and your family daily!!! So sorry that ya'll have received bad news, my heart breaks for all of the trials that ya'll are being put through. Stay strong!

kathy said...

I really feel for you and am praying for her complete recovery.

JM1977 said...

Continued prayers for sweet Kate and for all of you.

ABL said...

Praying for strength for Kate and y'all.

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