Kate had a routine clinic appointment this morning. We were eager to see how she was responding to the steroids and praying that her liver levels were continuing to trend downward.
Unfortunately, that was not the case and we received bad news.
Kate's liver is really struggling. Several of her liver levels have increased and are extremely high. Even higher than they were last Friday.
Kate's nurse practitioner wanted to rerun the liver function tests just to make sure that it wasn't a lab error because the levels jumped so much, so fast. It was not an error and in the two hours between blood draws, her levels actually got worse.
We were sent to radiology for a liver ultrasound and Kate will have a biopsy Friday at 8am.
We don't have any answers right now but will hopefully have a diagnosis and a plan to get my sweet girl better by early next week. There is still a chance that this is only GVHD and that Kate simply needs stronger medication to treat it. But, there is also a chance that this is something else, something major. That thought terrifies me.
Needless to say, I've been a mess all day. I know I will keep fighting for Kate but my gosh I'm exhausted and I feel defeated.
I am so incredibly sad that Kate is dealing with this now. She has been through so much. Her little body needs a break. It can't take much more.
As always, we would appreciate any and all thoughts and prayers.
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