September 4, 2012


The sickies have invaded my house.  More specifically, they have invaded my poor sweet boy.

This past week has been one of those don't sleep, barely function, need a month to recover kind of weeks.

Last Wednesday Will spiked a very high fever (we're talking 103 fever) which landed us in the Texas Children's ER. I was by myself as we didn't want to expose Kate to nasty ER germs and we don't have any family that lives even remotely close that could stay with her. 

The trip wasn't horrible - being in the ER with an infant is MUCH easier than being in the ER with a toddler. If you don't have first hand experience with the ER and a toddler just trust me that it is just about the most tiring, stressful thing ever. You say things like please do not lick the floor. DO NOT LICK THE FLOOR. FOR THE LOVE STOP LICKING THE FLOOR.  Not fun.

Ok back to the sickies.

After nearly 11 hours at the ER, Will was diagnosed with a nasty UTI. For some crazy reason he was not admitted to the hospital but he did get a round of IV antibiotics while we were there. In hindsight, I really wish I would have pushed for an admission.

We had a follow up with our ped Friday since he was still having fever despite loads of antibiotics so he got a rocephin shot to hopefully help clear things up faster.  While at the ped's office, our doctor started talking about kidney issues with me.  Apparently it isn't good, or common, for a baby (especially a boy) to have a UTI this young. She is fairly certain that Will has something called Kidney Reflux. He will have a renal ultrasound and a VCUG in the next few weeks to officially diagnose him and determine the severity.

I spent all weekend stressing about this and worrying with how all of this will impact his transplant and such. Hearing things like high chance of repeat infection scare all moms but especially those of us who know our kids are going to have several months with zero immune system.

Sunday night Will would not sleep unless he was being help completely upright. He was congested but it didn't seem too bad.  Well, come Monday it was awful.  The amount of snot I sucked out of his poor nose is just awful. Add in that it was thick and green and I knew we were be back at the ped's office again today.

Our doctor got us in early this morning and Will was diagnosed with an ear infection and a virus. On top of the UTI he is still fighting off.  The doctor thinks the high fever created the perfect environment for all of this to brew and grow.

I wanted to just cry right there and scream "can't he catch a break".

I'm just in one of those "my baby has enough issues leave him alone and let some other kid without a genetic condition and kidney issues get a damn ear infection" moods. 

Needless to say, life has been pretty crazy and I am praying that my sweet boy can finally get some relief.


Colleen said...

ugh, I am sorry. when I saw will's pic on IG that's all I thought, can he get a break. poor little guy : (

Gina said...

I'll add him to my prayers list. I'd say hang in there, but no one likes hearing that. So complain as much as you need to. You deserve it.

Anonymous said...

Hi Lindsey. I just wanted to let you know that my daughter who will be having a BMT in the future also has kidney reflux. She has stage 3 in her left kidney...diagnosed after she had a UTI as an infant. She has had quite a few VCUG's and takes a nightly antibiotic. Since being diagnosed and taking the preventative antibiotic she has not had one infection (knock on wood). If you ever have questions about the VCUG or reflux or want to chat I am always available to share our experience. Hugs to you and your adorable family!

Heather said...

I'm so sorry you've been through so much this week. I hope you guys are on the mend.

Deanna said...

That sounds terrible. I will be praying!!!

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