Kate's run of good days didn't last very long.
The past 4 days have been HARD. Kate tested positive for a virus and was placed back on isolation. It is nearly impossible to keep her occupied/entertained in her room. She wants to walk the halls and see people!
We've also been battling extremely low platelets and a shortage of Kate's specific platelet needs at the blood bank. Due to the shortage, Kate was unable to receive platelets Thursday which resulted in her levels completely tanking. We've been playing catch up since then which has led to daily platelet transfusions this week. Kate is covered in bruises - deep, dark bruises. We've been very careful to avoid falls/ tripping but, the littlest things cause bruising since her levels are nonexistent. Simple things like leaning over her toy bucket to pick something out results in deep bruises.
Kate's morphine has been upped yet again due to signs of discomfort. It seems to be helping as she is finally napping now after a marathon day yesterday that consisted of 12 straight hours of awake time. Thank goodness it was Sunday as Alex and I were able to deal with Kate together!
Today has been another stressful day.
Kate's ANC is still zero, her platelets were 5 before receiving a transfusion, and she spiked a fever. We still have no signs of engraftment.
There is some talk in the BMT community that fever, illness, and an overall blah feeling can be a reaction to the body ramping up for engraftment. But, it could also mean Kate is just sick because her counts are so low.
I'm trying to stay positive but, if I'm being totally honest, it's getting harder and harder every day. I never expected Kate's ANC to still be sitting at zero on day +12. I thought we would have seen some upward movement by now. Maybe my expectations were unrealistic but, I'm feeling defeated by her counts.
I know I need to trust in God's plan, keep the faith, and stop worrying. But, that is so hard to do as I sit and watch Kate feel so miserable.
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