This process is such a roller coaster. Good days. Bad days. Good hours. Bad hours. Ups. Downs.
It is exhausting.
I feel like the second we receive positive news, we are bombarded with triple the amount of bad/negative news.
On top of all of the ups and downs, I am currently caught in the horrible hell known as comparing. Comparing Kate against other BMT kids. Comparing Kate against other kids in the unit, that had transplants after her. Comparing Kate to BMT stories on the Internet.
I need to stop. Every time I compare, the only realization I come it is that Kate is on the slow end of things. She will not be someone that goes home by day 25. Hell, she might not even be home by day 35.
The exciting news of Kate's increasing ANC was instantly shattered by more issues with her line due to the incompetent nurse. Then her ANC plummeted yet again.
Over the past several days, Kate's line has been repaired (which involved cutting the line and patching it due to the clot never dissolving properly), she's started an ANC booster medication because she can't seem to increase her counts on her own, we've started continuous lasix as well as other diuretics because she can't pee, she's dealing with breathing/ oxygen saturation issues due to excessive fluid, and she is back down to a low ANC.
One step forward. A million steps back.
I'm just ready to know this transplant worked and that Kate is actually getting better.
- Posted using BlogPress from my iPad