I cannot believe we are a week post transplant! The days seem so very slow but the weeks are flying by!
If y'all remember, Kate's friend Caleb went home on Day +20. That means Kate could be home in as little as two weeks. We aren't getting are hopes up but, it's nice knowing we are making progress towards discharge.
Kate has had three very good days in a row! I think it is a combination of her starting to feel better and the fact that we finally have her pain under control. Whatever it is, we are happy to see glimpses of our old Kate filling the halls of Texas Children's!
Kate spends the majority of her days walking the halls of the BMT unit, begging random people to pick her up (she seriously has no stranger anxiety at all - we will have to work on this as she gets older), and playing in the play room! Her endurance is building back up and she is literally running in the halls these days!
Counts still remain low (her ANC is at 0.02) and Kate continues to eat through platelets like crazy (she's getting platelet transfusions every other day) but she is on the road to recovery!
Our next goal is to have her ANC start increasing. Engraftment (defined as an ANC >500 for 3 consecutive days) doesn't normally occur until 2-4 weeks post transplant which means we should see small increases in her levels soon.
I know I sound like a broken record but, thank you so much for your thoughts and prayers! They are working!!
For those who have asked for specific prayer requests, I have two right now! The first is prayers for engrafting and signs of Kate's ANC increasing.
The second is that Kate engrafts at 100% donor cells. CAMT (Kate's genetic condition) comes with a very high risk of leukemia. If any of Kate's cells remain in her body, she will be at risk for developing leukemia. We need Kate to be filled with 100% of her donors cells so that we can eliminate this risk. We won't know engraftment percentages until something like 30 days past transplant when her first engraftment study is done. So all prayers in regards to this are much appreciated!!
A random side note. You may notice that Kate looks tan in the picture above. Your eyes are not fooling you! One of the side effects of the first chemo drug Kate was on is temporary changes in skin pigmentation. So despite not seeing the sun for over 3 weeks, Kate is sporting a nice busulfan tan!
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