August 25, 2011

Day -10 & Day -9 Hospital Pictures

I finally had some time last night to upload pictures from my camera.  I still am about 3 days behind (today is day -6 in transplant language) but I figure family and friends may want to see some Kate cuteness!

We had another hard evening yesterday.  Kate got very sick to her stomach and couldn't keep anything down.  She is now refusing to eat anything but a few puffs a day and is refusing most bottles.  She has only had about 5-6 puffs and 4 ounces of formula all day.  Lack of appetite is to be expected but I just hate that she feels so bad.

We start the "mean" chemo drugs tomorrow so Kate will spend most of the day pretty drugged up on demerol and benedry to help her body handle the medications.  Thankfully Alex has taken off work and will be here to help me out.

Ok, on to fun pictures of Kate before she started feeling really bad!

Admission day (day -10) - getting vitals taken when we arrived!

Checking out her room!

Checking out her toy boxes!

Day -9: Reading Stella (one of her favorite birthday presents) a book!

Day -9: Sleeping and not feeling good.  Poor baby.

Kate's biggest struggle right now is that she doesn't understand how to conserve her energy.  She wakes up feeling refreshed so she goes full steam ahead - playing, talking, attempting to walk (she has almost completely regressed on her ability to walk which is so sad), etc.  It's great to see her play but, about 20 minutes in she is totally wiped out and then is miserable for the rest of the day.  I wish I could her her understand how to spread her play time/ energy out.

I will try to update again tomorrow with more pictures.  I'm trying my best to take pictures every day!

Thanks to all who voted for us yesterday - we appreciate it!  You can vote daily.  I see a direct correlation between an increase in people heading over to the DKMS website to learn about bone marrow donation and how high we are rated on Top Mommy Blogs and that makes me happy!

Top Mommy Blogs - Mom Blog Directory

8 comments:

Tamika said...

My prayers are with you...my heart aches at what you're going through...so I will continue to pray!

Ashley said...

She is so precious, and such a little trooper! <3


Ashley @ LaughLoveLattes.com

Kristin said...

All my love and prayers to you and your sweet girl. XO You've got my vote too!

Tiffanie {Pineapples and Pickles} said...

I love the picture of her bebopping into her room with that huge smile on her face. Praying for you guys daily.

Shannon said...

She looks like such a big girl in that second picture! So cute. Continuing to pray for her health, and also for her strength. You are doing such a great job. She is blessed.

Megan and David said...

Voted again! She is obvs the cutest baby in the whole hospital.

Brittany said...

My heart just aches seeing such a sweet hearted girl having to go through this. My daughter is just a few months younger than her, so I've been reading your blog for awhile but haven't ever commented. I just wanted to let you know you're in our prayers. I hope you don't mind if I share your story on my blog, as well!

Life Is Beautiful said...

I commend you for being such a strong and good mama. I am thinking of your family and cannot wait to see photos of Kate feeling better. Keep up the good work and take care of yourself. Kate needs you.
God Bless you!

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