I finally had some time last night to upload pictures from my camera. I still am about 3 days behind (today is day -6 in transplant language) but I figure family and friends may want to see some Kate cuteness!
We had another hard evening yesterday. Kate got very sick to her stomach and couldn't keep anything down. She is now refusing to eat anything but a few puffs a day and is refusing most bottles. She has only had about 5-6 puffs and 4 ounces of formula all day. Lack of appetite is to be expected but I just hate that she feels so bad.
We start the "mean" chemo drugs tomorrow so Kate will spend most of the day pretty drugged up on demerol and benedry to help her body handle the medications. Thankfully Alex has taken off work and will be here to help me out.
Ok, on to fun pictures of Kate before she started feeling really bad!
Admission day (day -10) - getting vitals taken when we arrived!
Checking out her room!
Checking out her toy boxes!
Day -9: Reading Stella (one of her favorite birthday presents) a book!
Day -9: Sleeping and not feeling good. Poor baby.
Kate's biggest struggle right now is that she doesn't understand how to conserve her energy. She wakes up feeling refreshed so she goes full steam ahead - playing, talking, attempting to walk (she has almost completely regressed on her ability to walk which is so sad), etc. It's great to see her play but, about 20 minutes in she is totally wiped out and then is miserable for the rest of the day. I wish I could her her understand how to spread her play time/ energy out.
I will try to update again tomorrow with more pictures. I'm trying my best to take pictures every day!
Thanks to all who voted for us yesterday - we appreciate it! You can vote daily. I see a direct correlation between an increase in people heading over to the DKMS website to learn about bone marrow donation and how high we are rated on Top Mommy Blogs and that makes me happy!