June 6, 2012

One Year

One year ago today I woke up, got ready, and loaded Kate in the car.

I drove the all too familiar route to Texas Children's.

I parked in Garage 16 - level B4 - in "my" spot and stopped on the 3rd floor for a cup of coffee.

I took the elevators up to the Cancer Center on the 14th floor.

Veronica, our favorite phelbotomist, took Kate's blood while Mrs. Teresa, our favorite tech, sang to her.  After 8 months of  1-5 blood draws a week we learned that Mrs. Teresa's singing kept Kate happy while she was poked.

KSBJ was on the radio.  I Will Lift My Eyes by Bebo Norman was playing.  Veronica always had KSBJ playing.  I loved that I was able to listen to worship music at the start of every stressful appointment.

After her blood draw we waited in the waiting room. 

Alex showed up.  He didn't normally come to routine appointments - there were just too many for him to take off work every single time.  But I had a bad feeling about this appointment and asked him to meet me at Texas Children's that morning.

It must have been raining, or expected to rain, because I vividly remember Alex walking off the elevators carrying an umbrella. 

As soon as I saw him I felt a sense of comfort. 

I knew I needed him by my side that day.

While waiting, Kate's hematologist, Dr. Patel, walked through the waiting room.  She ignored us which was very abnormal. 

I knew something was wrong and I vocalized my fears to Alex.

He told me to calm down.  That everything was ok.  I was working myself up for nothing. 

Our buzzer went off and we were taken to the first exam room in the green pod.  There was a book about children around the world in the room as well as a little toddler sized chair.

Kate had just started walking and insisted on pushing that chair around the exam room. 

Back and forth.  Back and forth.

Dr. Patel came in the room.  She attempted to have small talk but I could tell something was off. 

Then, I heard the words I will never forget.

"Well, remember that rare genetic test we've been waiting on results for? Congenital Amegakryocytic Thrombocytopenia? Kate's results were faxed in this morning. Unfortunately, Kate tested positive for CAMT and will need a bone marrow transplant as soon as possible."

I just sat there. 

Alex picked up Kate. 

She threw a fit because she wanted to keep pushing that chair back and forth.

Dr. Patel got up,  walked to the chair I was sitting in, gave me a hug, and we both started crying.

I sobbed big, hot tears. 

Kate's amazing doctor sobbed them right with me.

Shocked. Heart broken. Terrified. Determined.

One year.

Three hundred and sixty five days.

On June 7, when I blogged about the journey we were about to embark on, I said that "we serve a mighty God who will wrap his arms around my family and carry us through this journey."

He did. 

He carried us through. 

One year post diagnosis.

Nine months and five days post transplant.

What a year this has been.


21 comments:

Katie @ Loves of Life said...

Mannnn I have chills! To see how far Kate has come? amazing. Amazing. It's a testament to how good of a God we serve and what fabulous parents she has ;)

Katie @ Loves of Life said...

Mannnn I have chills! To see how far Kate has come? amazing. Amazing. It's a testament to how good of a God we serve and what fabulous parents she has ;)

Jill said...

This made me tear up. Thank you for sharing. Prayers are continuing for her, Will, and the rest of your family as your face this journey again. And God will carry you through it again.

Jill said...

This made me tear up. Thank you for sharing. Prayers are continuing for her, Will, and the rest of your family as your face this journey again. And God will carry you through it again.

Allie said...

This made me cry!!! So many prayers for your entire family always

Kodi said...

Oh Linds. This gave me chills and hot tears. So, so, so thankful that he is mighty to save and Kate is thriving. XO

Kodi said...

Oh Linds. This gave me chills and hot tears. So, so, so thankful that he is mighty to save and Kate is thriving. XO

Taylor said...

What an amazing testimony that sweet girl has!! So glad she is healthy now!!!

bencu said...

I have goosebumps reading this post. What an amazing year for your family!! Your story continues to give me inspiration and hope for Hadley's future. You are such a strong mama!! Thanks for sharing your story with us.

Lucy Marie said...

How marvelous. I have chills reading this. Praise God!

Stephanie said...

I am crying big, hot tears with you today. I am so thankful to have been able to witness this amazing journey. Thank you for sharing it with us! Love that beautiful baby girl, such a fighter!

Addie said...

I'm crying. I'm so glad that God has blessed you and your family, and He will continue to do so. I'm also very thankful that you share your experiences. If anything, it makes us all take a look at our blessings!

Kelly said...

I love this post because I have seen how far you all have come. I'm so happy things went well for Kate. <3

Missi said...

Even though I do not personally know you, I started following your blog around this time last year and have prayed for your family daily! I will continue to do so as you travel the same journey with Will!

Lynsey said...

Praise God! How mighty and amazing he is. Crying big tears while reading this. So many prayers for your amazing, sweet family. Thank you for sharing Kate's journey with us.

Kaysie said...

This post is so beautifully written, Lindsey. What a blessing God has bestowed upon your family with Kate's recovery.

Laura said...

I love all of the details of this post.

Incredible. God is so good!

Erin said...

I'm crying those tears now. How far you all have come in one year is such a blessing. Kate is such a special miracle!

Annie said...

This is amazing, Lindsey. I only started reading your blog a few months ago, but I love hearing what Kate is up to. Praise God for bringing her through this! I'm praying for you as you walk the same journey with Will. God's arms are still wrapped around your family and He will keep carrying you!

Kimsey McCormick said...

Just now sitting down to catch up on the Boggan's..... I wasn't expecting to cry so hard on a Saturday night! You are a great writer and explain everything so well for us. I'm still praying for all of you!!! Much love from Mississippi!!!

Sweet Whimsy said...

I've just found your blog & find you to be very inspirational as a mother. Many prayers will be sent your way. Blessings-

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