June 2, 2013
Day -10: Central lines in & Admission
Will had surgery on Friday to have his central lines placed. These lines will literally be his life line over the next few months. They will administer chemo to kill off all of his "defective" cells, give him his new life saving cells from his donor, allow blood and platelet transfusions to sustain his life as his blood levels will literally be non-existent for weeks. They will also administer medications that will allow Will's body to cope with everything he is facing. Because of this, Friday was a pretty monumental day.
I wish I could say everything went off without a hitch. But, I cannot. The day was stressful. The surgeon was an ass (no other way to describe him) that treated me like an uninformed mother. I yelled. He yelled. I won. He apologized. It was not a fun day.
But, all that matters is Will's lines are in, they are flushing beautifully, giving back wonderful blood flow, and appear to be functioning perfectly! (Can you tell I've officially put on my nurse mom hat again?)
Today is officially day -10. This means that in 10 days Will will receive his life saving cells and will official begin his new chance at living a long, fulfilling life!
It also means that today is admission day! At noon today we will be residents of the 8th floor of Texas Children's for an indefinite amount of time. I'm praying it is around 40 days (similar to Kate's stay) but it could be more, or less, depending on how Will does will everything!
I am filled with every emotion possible as we prepare to start this journey. Denial has been the strongest of all emotions over the past few days. I'm sure reality will hit as I sit in a hospital room and readjust myself to the life of a BMT patients mom.
This evening Will will begin anti-seizure medication to prepare his body for chemotherapy. Chemo (busulfan) will start at 8am tomorrow morning and will run every 6 hours for 4 days. After those 4 days we switch to Campath in the AM and Cytoxin in the PM for another 4 days. At the end of those 4 days, Will's conditioning regime will end and he will have a day of rest before receiving his cells!
I will try my best to update daily. My updates will most likely happen in the evening once Will has gone to sleep (if he actually sleeps in the hospital - Kate did not sleep unless I was holding her). If you want the most up-to-date information about Will's condition, prayer requests, etc head on over to the blog Facebook page (link) as that is where I (or my sister) will be frequently updating!
Thank you to each and every one of y'all that is walking this journey with us! #teamwill is amazing and I am so thankful that my sweet boy has such an amazing support group!
We will get through this and Will will be a survivor!!!!!