June 2, 2013

Day -10: Central lines in & Admission



Will had surgery on Friday to have his central lines placed. These lines will literally be his life line over the next few months. They will administer chemo to kill off all of his "defective" cells, give him his new life saving cells from his donor, allow blood and platelet transfusions to sustain his life as his blood levels will literally be non-existent for weeks. They will also administer medications that will allow Will's body to cope with everything he is facing. Because of this, Friday was a pretty monumental day.

I wish I could say everything went off without a hitch. But, I cannot. The day was stressful. The surgeon was an ass (no other way to describe him) that treated me like an uninformed mother. I yelled. He yelled. I won. He apologized. It was not a fun day.

But, all that matters is Will's lines are in, they are flushing beautifully, giving back wonderful blood flow, and appear to be functioning perfectly! (Can you tell I've officially put on my nurse mom hat again?)

Today is officially day -10. This means that in 10 days Will will receive his life saving cells and will official begin his new chance at living a long, fulfilling life!

It also means that today is admission day! At noon today we will be residents of the 8th floor of Texas Children's for an indefinite amount of time. I'm praying it is around 40 days (similar to Kate's stay) but it could be more, or less, depending on how Will does will everything!

I am filled with every emotion possible as we prepare to start this journey. Denial has been the strongest of all emotions over the past few days. I'm sure reality will hit as I sit in a hospital room and readjust myself to the life of a BMT patients mom.

This evening Will will begin anti-seizure medication to prepare his body for chemotherapy. Chemo (busulfan) will start at 8am tomorrow morning and will run every 6 hours for 4 days. After those 4 days we switch to Campath in the AM and Cytoxin in the PM for another 4 days. At the end of those 4 days, Will's conditioning regime will end and he will have a day of rest before receiving his cells!

I will try my best to update daily. My updates will most likely happen in the evening once Will has gone to sleep (if he actually sleeps in the hospital - Kate did not sleep unless I was holding her). If you want the most up-to-date information about Will's condition, prayer requests, etc head on over to the blog Facebook page (link) as that is where I (or my sister) will be frequently updating!

Thank you to each and every one of y'all that is walking this journey with us! #teamwill is amazing and I am so thankful that my sweet boy has such an amazing support group!

We will get through this and Will will be a survivor!!!!!

12 comments:

Lindsey @ Let the Light Shine said...

Saying lots of prayers for you, Will, and your family!!

Jennifer Goltsberg said...

Good luck to you. God speed you all. I pray it goes well.

Erin said...

Overall it sounds like blessings in the works! I hate that the surgeon was an ass but yay for you sticking it out. I can only imagine how surreal this is for you as I am now thinking back to when I first started reading your blog a few months before Kate began this process. You have all come so far. Lifting so many prayers for all of you and especially Will on this BMT journey!

Jennifer said...

You guys are truly in my prayers.

Mama B said...

Praying so hard for you guys!! *hugs*

Amanda said...

Praying for you all!

Mommato3miracles said...

Just wanted to say that I will continually keep your entire family and your donor in my prayers. As these days pass, I pray for a supernatural peace to fill you and Will, that God will allow a miraculously easy BMT process, and you are home quicker than anyone thought possible. Continually praying!!!

Holly said...

prayers for you all! also, random question, do you have a bed in his room to rest?

Cnoreen said...

Praying for you and your family during this emotional and physical roller coaster!

Cnoreen said...

praying for you, will, and your family during this emotional/physical roller coaster

Leah said...

Praying for you and your family. It was your family that finally caused me to take the plung and become a bone marrow donor. Thinking of you guys!

Heather said...

Praying here in Canada too!

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