June 6, 2013

The calm before the Campath storm

We have had two fantastic days here in room 44! Will has been in such a great mood which has made hospital living a bit easier. We've spent countless hours walking the halls - or should I say Will running the halls while I frantically push his IV pole so that he does rip his lines out! He is super fast and I am not that great navigating with an IV pole!

If you follow me on InstaGram you already know this but Will has discovered the play kitchen in the play room and is obsessed with cooking, pulling out all of the drawers, and pressing every button possible! We make many pit stops in the play room during our countless hours of hall walking!

I've noticed that his energy level is dropping a bit today. He will play hard for about 30-45 minutes and then he just stops and crashes. This is expected and is proof that the chemo is doing its job and killing off all of his bad cells so his body can prepare for his new donor cells!

While I am enjoying these happy days, I am prepared for the storm that will be tomorrow. Will starts two new chemos tomorrow and one of them is the most unpleasant medication ever. Kate had an awful time with Campath and I'm prepared for an extremely hard day tomorrow (and for a rough weekend) as Will receives his first Campath infusion tomorrow morning.

Campath works to destroy lymphocytes. When lymphocytes break down they excrete histamines which causes the body to feel like it is having an allergic reaction to itself. Hives, fever, vomiting, blood pressure issues, and retaining water are all very common, and immediate, side effects. The BMT team here has started experimenting with different pre-meds in hopes of limiting the side effects so Will is being loaded up with several anti-histamines today in preparation for tomorrow's infusion. I'm praying this prep work makes tomorrow go smoother than Kate's experience with Campath!

I can't believe we are less than a week away from his transplant!!

6 comments:

Rikki said...

Continuing to pray for you all!

Lindsey @ Let the Light Shine said...

Lots of prayers! I hope that tomorrow will be better than you anticipate!

Lauren & Eddie said...

Oh, bless him. I'll be thinking about y'all tomorrow. Stay strong, Mama!

Mommy Mandy said...

Praying so hard for you today!!!

Holly said...

Prayers for that sweet boy!

Tiffany said...

You guys are CONSTANTLY on my mind! Hugs!

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