We had our conference with Kate's transplant doctor, nurse practitioner, and coordinator today. It was a long meeting - well over 2 hours.
In a small room.
With an 11 month old walking baby.
Alex and I played pass the baby back and forth while trying to absorb everything everyone was saying.
Overall, Kate did good...if by good you mean puking everywhere, walking over to her doctor and attempting to pull up her skirt, licking Alex's shoes, and licking the chairs in the room.
Sigh. Like I said, it was a long appointment!
Alex and I were shocked to find out that Kate will be admitted to Texas Children's August 9! That's in 2 weeks! For some reason, my mind was set on a September transplant and I was totally caught off guard! I've been very overwhelmed at the thought of getting everything ready in two weeks!
We will be spending a decent amount of time at the hospital the remainder of this week and next week. Kate needs a lung test (can't remember the name but she will be sedated), a chest xray, a kidney test, and a test on her heart (also sedated) before chemo can start.
August 9 - we will be admitted and her Hickman line (an intravenous catheter) will be placed
August 10 - start chemotherapy. Kate will be receiving a high dose myeloablative chemotherapy regimen
August 18 - donor cells collected; day of "rest" (i.e. no chemo) for Kate
August 19 - transplant; Kate's first birthday
Days leading up to her transplant will be counted as -X days. Meaning August 9 is day -10 (and today would be day -24). Her transplant is considered day 0 and then the days post transplant are positive days with day 100 and day 180 being major milestones. We will be in the hospital for at least 6 weeks; longer if Kate has any set backs.
I can't believe that everything has worked out so Kate's re-birthday will be exactly one year after our lives were forever changed. August 19 will always be an extremely special day for our family! And, you better believe all of her first birthday decorations will be used to decorate her hospital room as we celebrate the end of her first year and the start of her new life!
I also want to say how blessed we are by Kate's donor. Not only is he graciously giving Kate a second chance at life, he is going above and beyond his call of duty in my opinion. He has responded to every phone call from the national registry within 24 hours and has had every test done within that same time frame. His promptness is the only reason Kate is going to transplant so soon.
Donors have to remain anonymous for at least a year. At the year mark, both the donor and recipient have the ability to agree for personal information to be released. I pray that Kate's donor is willing to meet us in the future! I will never be able to thank him enough but, I would love to give him a big hug and make sure he knows just how thankful Alex and I are for his decision to donate.
Until then, I will continue to pray for him, and his family, daily. God knows who is giving Kate this second chance - He has his hand in every step of this process. He will hear my prayers and cover our donor with His grace and love during this time!